August 18, 2006

And the Red Sox play a double header against the Yankees... Thank god we had a better day then them..
Aiden is doing well, he has been staying between 20 ml and 50 ml of oxygen (20 is the lowest 200 is the highest before they would have to go back to CPAP) They stopped his TPN (the gatoraid stuff I talked about last time) and now he is just getting normal sugar water with sodium and potassium. They have also started him on pergestimil 24 which has more calories then the regular pergestimil. He is now getting 21 cc's a feed and will stay there for 24 hrs before they increase, to make sure he is digesting the P24. So far so good though. He's even gotten to the point that 30 minutes before his next feed he starts to fidgit about. you can tell he is hungry. He doesn't cry often just gets antsy when he wants to eat or had a dirty diaper.
His nurse tonight also talked about trying him on a bottle in about a week or so. First they will give him drops of milk in his mouth to see if he swallows it and eventually start to try, once a day, during the day to see if he will take to a bottle, that way he gets use to it.
I look at him and he has come so far. No one thought he would make it, and he did. no one thought he would ace CPAP and he did. No one really thought he'd last on nasal canula this long and he has. He truly is a gift. He has an agenda, this little on, and he isn't going to let any one or any thing get in his way.
I said to my mom i often think of Chase and what he would have grown up to look like. I miss him so much, and it still hurts really bad for him not to be here. But I can't help but feel that he watches over Aiden and has pulled him through some rough times. That there is a little bit of my angel in Aiden as well.