I'm a bit bummed out.. Today was Aiden's last day with the E.I. program we had been working with. Because he needs speech and we are not in there service area we had to switch companies. We will now be working with the company that services Wakefield. We were lucky enough to keep the people we had because they live in the next town over and didn't mind coming to Wakefield on there way out in the morning or home in the afternoon. I know it's all in the best interest of Aiden, but it just stinks to lose two very special people. Nancy and Jean, you both gave Aiden so much. Thank you so much for all you have done, all you have taught him, and for as much as you have loved my little boy. He will have you both smiling at the end of all this, when he is talking up a storm, running all over, and telling me what he wants to do next.. haha
You both will be missed not only by Aiden but by me and Nancy i will miss our little talks. It was good to have an "outsider" to talk to. I do hope you both keep in touch.
On another note, Aiden's new word is "buttons" and today he said "up" for Nancy (on her last day how nice). He is doing so much better walking too. He will now walk from room to room with out holding onto anything. It's so great to see him so proud and excited about it too.
We are all currently battling colds. I have had one for almost 2 weeks and shared it first with Aiden and Morgan and now Riley. We are all doing better but still have them. Not too bad though considering Aiden is 19 and a half month and this is his very first cold. Hopefully it will be gone soon and it will be another 19 months before he gets another one.. :)
Monday, January 28, 2008
Tuesday, January 22, 2008
January 22, 2008
Nose Picking, Colds & Sniffles, 3 kids, and a sick Mommy..
That is a recipe for a much needed vacation I tell ya.. I've been battling this cold for a week and still have it. i now have my voice back and the"junk" inside is breaking up but I shared it with the kids. Aiden's got a runny nose and Morgan has a junky nose and a little cough with watery eyes. I feel so bad for them. The only one so far not effected (besides dad) is Riley.
As for Nose picking, it's Aiden's new thing. He has discovered he can stick his finger in his nose and does so often. He doesn't actually "pick" it, but just puts his finger there and sits there waiting for who knows what.. lol
He's getting better and better at walking now too. he will let go and walk across the kitchen and from the bath room to the living room with out falling.
He's drinking like a champ, most days 12 to 24 ounces all on his own. I've finally got him drinking milk again too because he was starting to prefer juice or water. Today he drank 8 oz of strawberry milk with no issue and now is drinking coffee milk. I figure that if I have to flavor it, it's not a big deal, as long as he drinks it. Besides he's not over weight, he's not even chubby anymore like he was when he was a baby so I'm not worried about it.
All in all he is a normal toddler to me. He even tried to say I Love You, which is a big deal considering he is behind on speech. i think he'll catch up soon though. He's come so far, my once tiny little boy.. Now look at him...
That is a recipe for a much needed vacation I tell ya.. I've been battling this cold for a week and still have it. i now have my voice back and the"junk" inside is breaking up but I shared it with the kids. Aiden's got a runny nose and Morgan has a junky nose and a little cough with watery eyes. I feel so bad for them. The only one so far not effected (besides dad) is Riley.
As for Nose picking, it's Aiden's new thing. He has discovered he can stick his finger in his nose and does so often. He doesn't actually "pick" it, but just puts his finger there and sits there waiting for who knows what.. lol
He's getting better and better at walking now too. he will let go and walk across the kitchen and from the bath room to the living room with out falling.
He's drinking like a champ, most days 12 to 24 ounces all on his own. I've finally got him drinking milk again too because he was starting to prefer juice or water. Today he drank 8 oz of strawberry milk with no issue and now is drinking coffee milk. I figure that if I have to flavor it, it's not a big deal, as long as he drinks it. Besides he's not over weight, he's not even chubby anymore like he was when he was a baby so I'm not worried about it.
All in all he is a normal toddler to me. He even tried to say I Love You, which is a big deal considering he is behind on speech. i think he'll catch up soon though. He's come so far, my once tiny little boy.. Now look at him...
Friday, January 11, 2008
January 11, 2008
Aiden is 19 months old today, can you believe it!
It's been a crazy 10 days or so. Last week we had our appt with the pedi and he got his boosters and RSV shots which meant he got poked with 5 needles that day. :(
Then Wed of this week we had his scheduled MRI. He wasn't allowed to eat 5 hrs prior or drink anything 3 hours prior so I tried to set a schedule to get him fed and full at the very last minute I could fit in. Well we all know my schedules never seem to stay on track. He woke up early on his own (too early) 4am, and finally after 2 hrs of being awake and not getting him to go back to sleep I fed him at 6 (I was planning 7:30-8:00 since his MRI was scheduled at 1:15).
He didn't eat much, had some juice and finally fell back to sleep at 6:30 so i wan't going to wake the poor kid up at 7:30 to try and feed him again. He got up at 8:30 and I squeezed in an apple sauce (what a few minutes and i didn't want him to starve) He ate it right up and had some more juice. We got ready and Nonny (my mom was here to watch the girls) and we planned to leave about 10:30 since he had an appointment with the child shrink at 11:45 first (part of the MRI study they are doing along with his regular MRI)
Well Daddy was wiped out and exhausted cause the girls were up all night and as much as he wanted to be there he ended up staying home with the girls (assuming they would sleep since they were up all night) and he could get some rest too, so Nonny went with us.
We left the house at 10:15, got to Children's Hospital at 11:20 and checked in. We had our appointment with the "shrink" and that took about an hour and then we walked over to MRI to check in. We waited a little bit and then they came to tell us they are an hour behind cause one of the scans are broken so we could go get something to eat. (Not Aiden though, the poor kid)
Me and my mom went to the cafe with Aiden and grabbed a bit and I was so happy that he didn't fuss for food, he didn't really care which was good cause it would of broken my heart even more to not be able to feed him if he was really hungry. We went back to MRI and waited about 45 more minutes and they called us in. We weighed him, talked about this and that and prepped for the IV. (I was not looking forward to this since it's been a wile since he has had one and he use to be such a hard stick. i have a 2 stick minimum before I refuse to let them poke him.
They got it in on the 2nd stick which almost got pulled out cause he was fighting and the nurse holding him who I guess is really good at it, didn't anticipate him being so strong for such a little kid.
SO the IV is in, Aiden now thinks they are all evil I am sure and he is getting some love from Mommy and Nonny. Then about 15more mins and they come to put the meds in. Those took about 4 to 6 mins and he was out like a light.
Off he went to sleepy land and into the MRI for 2 hours. All went well til the end and the last set of films (a 7 min series) he woke up for so they had to redo them which meant they had to give him a little more sleep stuff. The got the films all done and we waited in recovery. he had to wake up, drink some juice and be awake for about 15 mins before going home. Well he didn't want to wake up and it took a while
Well after all that we finally got to leave the hospital at 7:15pm.. 9 hours people... Oh what a day, I am glad Chuck didn't go cause even if he wasn't tired he would of never lasted 9 hours there.
We should have the results in a week or so and I assume all is fine. They did it as a follow up because of the bleeds he had in his brain when he was born as 98% of preemies born that young do, and they did extra films for the study they are doing about kids who have the bleeds and how they progress through the years. We figured he had to haev the MRI anyways so why not let them take a few extra pictures if some place down the line it could help out another little kid.
On the EI side of things, Aiden was suppose to have his 1 year eval on Thursday at 8:15 in the morning. Well since we didn't know the MRI was going to mess up the entire day and his entire sleep schedule. (She was in and out of it all night til about 10:30pm and then awake til 4am) So EI showed up and we all talked but let AIden sleep and rescheduled to do it next week. In our talkes we talked about getting him a PT and speech. PT to help build mor trunk muscles which are tied into speech believe it or not and speech because, well he's delayed.
The problem with this is that Tri-City the company we go through doesn't service our town since we moved, and the only reason we still have them is because his 2 awesome EI workers that come every week live one town away and have no problem keeping us. However now that we need and want speech we can't get a speech person willing to travel to wakefield. It's not far from the service area but what can ya do. This means we have to switch to Criterion and get all new people and lose the people we have which kills me but I know we have to do it cause it's the best for Aiden to get him the services he needs.
Other then that he is doing fab with EI and learning new things all the time. He is now walking better then last week and I am sure in the next few weeks he'll be walking all on his own.
We've come so far, it's hard to believe he was my less then two pound baby that almost didn't make it and spent 5 months in the NICU before coming home. He's an amazing child, and wonderful son, and i love him more then life. (even when he is tearnign apart the living room and the computer desk as I try to type)
I will have more pics soon, I've taken tons just haven't put them on the computer yet.
It's been a crazy 10 days or so. Last week we had our appt with the pedi and he got his boosters and RSV shots which meant he got poked with 5 needles that day. :(
Then Wed of this week we had his scheduled MRI. He wasn't allowed to eat 5 hrs prior or drink anything 3 hours prior so I tried to set a schedule to get him fed and full at the very last minute I could fit in. Well we all know my schedules never seem to stay on track. He woke up early on his own (too early) 4am, and finally after 2 hrs of being awake and not getting him to go back to sleep I fed him at 6 (I was planning 7:30-8:00 since his MRI was scheduled at 1:15).
He didn't eat much, had some juice and finally fell back to sleep at 6:30 so i wan't going to wake the poor kid up at 7:30 to try and feed him again. He got up at 8:30 and I squeezed in an apple sauce (what a few minutes and i didn't want him to starve) He ate it right up and had some more juice. We got ready and Nonny (my mom was here to watch the girls) and we planned to leave about 10:30 since he had an appointment with the child shrink at 11:45 first (part of the MRI study they are doing along with his regular MRI)
Well Daddy was wiped out and exhausted cause the girls were up all night and as much as he wanted to be there he ended up staying home with the girls (assuming they would sleep since they were up all night) and he could get some rest too, so Nonny went with us.
We left the house at 10:15, got to Children's Hospital at 11:20 and checked in. We had our appointment with the "shrink" and that took about an hour and then we walked over to MRI to check in. We waited a little bit and then they came to tell us they are an hour behind cause one of the scans are broken so we could go get something to eat. (Not Aiden though, the poor kid)
Me and my mom went to the cafe with Aiden and grabbed a bit and I was so happy that he didn't fuss for food, he didn't really care which was good cause it would of broken my heart even more to not be able to feed him if he was really hungry. We went back to MRI and waited about 45 more minutes and they called us in. We weighed him, talked about this and that and prepped for the IV. (I was not looking forward to this since it's been a wile since he has had one and he use to be such a hard stick. i have a 2 stick minimum before I refuse to let them poke him.
They got it in on the 2nd stick which almost got pulled out cause he was fighting and the nurse holding him who I guess is really good at it, didn't anticipate him being so strong for such a little kid.
SO the IV is in, Aiden now thinks they are all evil I am sure and he is getting some love from Mommy and Nonny. Then about 15more mins and they come to put the meds in. Those took about 4 to 6 mins and he was out like a light.
Off he went to sleepy land and into the MRI for 2 hours. All went well til the end and the last set of films (a 7 min series) he woke up for so they had to redo them which meant they had to give him a little more sleep stuff. The got the films all done and we waited in recovery. he had to wake up, drink some juice and be awake for about 15 mins before going home. Well he didn't want to wake up and it took a while
Well after all that we finally got to leave the hospital at 7:15pm.. 9 hours people... Oh what a day, I am glad Chuck didn't go cause even if he wasn't tired he would of never lasted 9 hours there.
We should have the results in a week or so and I assume all is fine. They did it as a follow up because of the bleeds he had in his brain when he was born as 98% of preemies born that young do, and they did extra films for the study they are doing about kids who have the bleeds and how they progress through the years. We figured he had to haev the MRI anyways so why not let them take a few extra pictures if some place down the line it could help out another little kid.
On the EI side of things, Aiden was suppose to have his 1 year eval on Thursday at 8:15 in the morning. Well since we didn't know the MRI was going to mess up the entire day and his entire sleep schedule. (She was in and out of it all night til about 10:30pm and then awake til 4am) So EI showed up and we all talked but let AIden sleep and rescheduled to do it next week. In our talkes we talked about getting him a PT and speech. PT to help build mor trunk muscles which are tied into speech believe it or not and speech because, well he's delayed.
The problem with this is that Tri-City the company we go through doesn't service our town since we moved, and the only reason we still have them is because his 2 awesome EI workers that come every week live one town away and have no problem keeping us. However now that we need and want speech we can't get a speech person willing to travel to wakefield. It's not far from the service area but what can ya do. This means we have to switch to Criterion and get all new people and lose the people we have which kills me but I know we have to do it cause it's the best for Aiden to get him the services he needs.
Other then that he is doing fab with EI and learning new things all the time. He is now walking better then last week and I am sure in the next few weeks he'll be walking all on his own.
We've come so far, it's hard to believe he was my less then two pound baby that almost didn't make it and spent 5 months in the NICU before coming home. He's an amazing child, and wonderful son, and i love him more then life. (even when he is tearnign apart the living room and the computer desk as I try to type)
I will have more pics soon, I've taken tons just haven't put them on the computer yet.
Sunday, January 06, 2008
January 6, 2008
Aiden & Riley
Go Pats!!!!
I think at this point the girls have had enough... They are looking at each other like Hey when is this over..
It's now a new year.. Can you believe it? How time flies by is just crazy...
Aiden had a wonderful Christmas and was SPOILED ROTTEN by my parents. (What is an 18 month old going to do with a drum set) Oh Lord!!!! So lets just say the closet is enjoying a few of the toys until we find a bigger place to move to (hopefully by summer).
He really wasn't into opening presents like I thought he'd be. He like to tear paper and make a mess so I thought it would be right up his ally, but nope.. Maybe next year.. Eh...
We still had a nice Christmas though. We spend it and have dinner with my family and then the following weekend we have a mini Christmas with Chuck's family. Both were nice days.
Aiden is walking a lot better. I wouldn't say he is officially "walking" yet because he still falls and still needs assistance by holding a hand a lot, but he did walk across my moms kitchen Friday night and Saturday morning all by himself. The funny thing is, he thinks it is hysterical. He cracks up laughing and then gets himself going that he laughs so hard he can hardly stand up. It's the funniest sight and ends up making me laugh so hard I cry. He is such a giggly kid, i love it.
As for EI, he is doing wonderful with drinking. We haven't used his g-tube in a few weeks to bolus him with fluids at all. He's done enough to keep himself hydrated all on his own. What a kid! He learns so fast sometimes. All you have to do is show him someting once or twice and he has it down packed. Like getting on and off his bouncing zebra (by fisher price) at first he didn't realize you had to hold yourself on. Then once I showed him, he did fab and learned to get off it with out falling on him bum with no trouble at all.
In doctor news, he now weighs 24 pounds and 12 ounces and is 31 inches. He is no longer my Chubby baby. He's still got some meat on him, but nothing like his baby chub he had and the boy can eat when he wants to. He's just a happy healthy boy, what more could you want..
He got his booster shots and RSV shots on Thurs. I felt so bad I almost broke down. The poor kid had to get 5 needles.. FIVE!!! all at once.. Oh my heart broke and HE CRIED!! but soon after he was ok. He did however stare at his nurses for a while when we were making our next appt as to say "back off ladies, i don't like you two anymore"
He also has an MRI this week on Wed. He was enrolled in the study for preemies who had brain bleeds when they were born. Most preemies do, but not all i the area he had them in. When they asked to enroll him, me and Chuck agreed figuring it's not going to hurt him and if it can help out someone else going through what we did then why not do it.
The only kicker is for the MRI they have to sedate him. It's always scary when a little one gets sedated for something, but we will be there right by his side and my mom is coming up to stay with the girls til we get back since we'll be at the hospital for about 4 hours or so.
Other then that there is really nothing new. He's just a "normal kid" doing "normal things" as far as I am concerned. Oh and we have a new word.. CAT!! After me saying it 1000 times a day he finally says it. I might have mentioned it before but I can't remember.
he doesn't say much still, but I know in time it will come. It is the one thing he is a bit behind on (talking) I think, but EI isn't worried about it so i guess I shouldn't either.
out words are (of course) DUDDA!, and then sometimes MUMMA (not as much as he use to say it), NUNNA, YA, HI, CAT, actually none of them he says a lot, besides Dudda, but we talk to him all the time and you can see him trying to copy you. I think once he does talk we are not going to be able to get him to shut up.. LOL
Subscribe to:
Posts (Atom)
