Lilypie 3rd Birthday Ticker
Lilypie 3rd Birthday Ticker

Monday, April 21, 2008

April 21, 2008

SO.... Can we say GOT G-TUBE?

And the answer would be NOOOOOOOOOOOOOO !!!!

It's gone, it's out and thank god... Pictures to be posted later cause I am just too lazy to load them on the computer and post them now.. Sorry

Other news is Aiden has been doing well with E.I. , however we had to push a bit to get a speech therapist. We finally got one out to do the evaluation and she will be coming back to write up his IAP. As usual once we finally get something we want, something puts a kink into it. We also got something else we wanted ( a house) which means Aiden will now be put into a new program in the new town when we move. We close on the house May 16th so I am hoping he will have E.I. until we move, and then we will have to wait and see how long the waiting list is at the next place. The good part is, that his IAP for speech will already be written and that means he will get a speech therapist from the next place a lot faster. YAY for that!

I know they said once he started walking it is very common for talking to take a back seat, but it has really taken a back seat I think, and I'm his mom. I see him more then anyone so I think I'd notice more then E.I. would.

Before he'd say Momma, Dadda, Nanna, Cat, Buttons, Up, Ya, Aiden, and a few times we got hi, cup, pup (for puppy), and baby. Now we are down to Momma, Dadda, Ya, and Nanna. Big bummer.. You can say a lot of things to him and he knows what you mean, or ask him to say words he use to say for example "buttons" which he said all the time, and now he just smiles and laughs this cute little laugh like I can say it but I'm not going too.

Other then that he is the typical child. Into EVERYTHING, tries to eat EVERYTHING, and just is a delight to be around. He is very well natured, smiles and giggles all the time. Loves, I mean LOVES to play peek-a-boo, or I'm gonna get you.. It's hilarious..

As for the tube, I don't even think he knows. It hasn't changed anything he does, (however I have noticed he eats more at times. Like today he had dry cereal for breakfast, then 20 mins later a beechnut banana pudding and 1/4 of a cin/ras bagel. Then for lunch at 3 he ate 2 whole hotdogs himself, he didn't share any with the cat lol. At 6:30 since right after lunch I took him to the park for 2 1/2 hrs I figured I'd treat him to Mc D's (daddy's no no) and he ate 1/3 of a double cheese burger, 2 chicken nuggets and a small fry.. You would think the kid is huge but he is still skinny to me. He has gotten taller so he thinned out a lot (he was a fat baby) lol.
He now floats back and forth between 25 and 26 pounds.

Well that's about it. I'llpost more pics soon.. I promise..
Hugs to all..

Tuesday, April 01, 2008

April 1, 2008

It's been a rough week.. We had pop's wake (my dad) on Thursday. Aiden and I went down to my moms after I got a sitter for the girls on Monday and saw my dad before they took him away. Aiden as he always did went over to him and kissed him. It broke my heart!
We came home that night and then the kids and I went down on Wednesday and stayed until Sunday. I took this week off from work too. I am so physically and mentally exhausted. Sunday night I went to bed early but it took me a while to fall asleep. I kept waking up so in the morning I was still so tired. I set my alarm to go to work and slept through it. By the time I got up and could function it was too late to attempt to get ready and make it to work in time. I figured since I had to take off Wed for Aiden's GI check up and then I was already taking Thursday and Friday off to go back down to moms and spend with her, what was the point of going to work for just tuesday so i took the week off. I'd like to say it will give me time to rest but with three little ones it doesn't ever seem that real rest is possible. Tonight I did however get a few hours to watch a movie and it was nice to just forget about everything for two hours, not have any crying babies and just veg out. Thank you to Chucks parents for taking the kids. They are going to watch them Sunday too for a few hours so me and Chuck can go to a movie. It will be nice to spent time with just me and him. I miss him, and we don't ever seem to have any alone time at all any more.

Before I was down at my moms as much as I could be with the kids so my dad could spend time with Aiden. I'm grateful he got that before he passed. He loved that little boy and Aiden always made him smile. Now with him gone, I want to spend as much time with my mom as I can until things settle a bit. It's going to take her a while to get back into the swing of things. She was with my dad for 31 years and 90% of everything she did was to take care of him. If it was making dinner or getting his meds ready. Running to the store or takign his blood sugar readings. Everything my mom did was for my dad and it's going to be so different and so quiet with out him. I still wait for him to be there when I get there. To wake up and have it all be a dream. It's weird and although he isn't with us anymore I'm not ready to say good buy yet. I have my pictures and I look at them like he is still here and it's not registering completely that i won't see him again. It hurts and it kills me even more to see my mom go through it.
I can't imagine. I know what it felt like when I lost Chase and I only had him alive for 27 minutes, I can't imagine having him and being with him every moment of 31 years and then it all being over and him being gone.
My heart broke when I lost Chase, it's still broken, and it hurts to think about. There isn't a day that goes by that I don't miss him and want him here with me.

I know my mom will never forget and a part of her will be changed forever, I just hope she is ok at the end of all this. I could not imagine her not being here with me. She is my best friend, my everything, she is my mommy and I only hope my children will love me like I love her. She is the one who made me who I am and I would not be the same with out her.

As for my dad, we had many differences and he was a hard parent to grow up with. At times life was aweful, but in the end he was my dad and for that I love him, and I miss him. I hope now he is in a better place with out all the suffering he had while he was here.

RIP Dad.. I love you and I will miss you and I promise I will remind Aiden of you often. Watch over mom and tell Chase I love him so much.