May 30, 2007

I am not even sure how to start this post as I sit here in tears. Not because of Aiden, or the current pregnancy, but for a baby and a family I don't even know.
The past few days I have been following a few new blogs. This particular one is a family who had triplets roughly about 3 months ago. They were also 24 weekers (2 boys and a girl).
When I found the blog, the family had already lost there little girl and one of the boys, and were fighting with everything they had for there 3rd little one Jaxon.
As I read more and more, it hit so close to home. That some days I had to stop due to getting too emotional and being pregnant with twins right now makes it harder. I just feel so connected to them, and it doesn't help that some of them pictures remind me of Aiden.
They had lost the first 2 babies 6 days after they were born, and lost Jaxon yesterday morning.
My heart hurts for them. He was going through so much and a lot of it was the same things Aiden went through. Unknown infections, NEC, laser surgery for ROP, low blood pressure, and the list goes on.
When I read today he passed, I had a feeling before I even looked, but it tore me up inside.
So I am asking to please pray for the McConathy family. I know oh so well what it's like to lose a child, and what it's like to fight your way through the NICU. I can not imagine losing 3 with in months..

As I read there blog http://www.babysites.com/sites/mcconathy1
I feel very blessed to have Aiden here with us. With all we went through, and all he fought his way through, in the end he survived and as the obvious situation shows, that doesn't always happen.

I know my son is strong and went through so much, but it could have turned out so differently.
He has changed my life, and I could not picture my world with out him. My only wish right now is that no baby would ever have to go through all these things, and that Aiden's brother Chase was here with us too.. God I miss him so much.

I'm also asking you to pray for the Fox family.. They also had triplets (3 girls) and have lost two (Georgia & Livia) to NEC, what Aiden had twice and almost died from the first time. Right now there doctors are watching Nina for the same thing. They are not positive she has it, but taking every precaution. http://foxmiracles.blogspot.com/

May 15, 2007

Not too much to update here.. OT came to evaluate Aiden last Thursday and will come back in 2 weeks. The lady is really good and gave a lot of suggestions to do to help with him learning a bottle or a cup. I think (and so does she) that we may just by pass the bottle all together and go right for the cup. In the mean time we (me and Chuck) have been working with him using his sippy cup and he's doing pretty good for just starting to realize what it is and what he should do with it.

Today was the first day that he picked it up and took a few sips with out pouring too much in his mouth. He does ok when we guide him, but today he did it all by himself. He didn't sputter or cough once. He drooled a little out but hey, he's a drooler now any ways. I'll take it!

Other then that it's just working with him more and more and I know he'll get it. He's taken to it pretty good so far. He's also doing better at standing when being help, and when you say stand up he knows what you mean. He still loves to bounce though. We should of named him Tigger!!

He's also doing better at sitting up on his own. At times he'll get situated and sit perfect for 15 seconds. Then he gets so excited and pushes back and wants to stand that he falls over.
Another thing I remind myself in all due time, he'll get it..

For the most part he is a very happy kid. He has his moments, like yesterday when he is a screaming banchie, but part of that was I thin he has bad gas yesterday and was just not happy.
Although today he is a totally different baby then yesterday, and trust me that is a GREAT thing.

Well the great thing is calling, and it is about time for bed for him, so until next time..

March 7, 2007

It's been a busy week end, we had the March of Dimes, Walk america on Saturday and then looked at houses for sale on sunday, all in all it was a good week end.

The walk was great. I did the best I could but didn't want to over do it so I was slower then some. Aiden enjoyed the time out in the fresh air and a funny thing happened to us.
As most of you know we started doing the walk in honor of Chase. Well as he is always on my mind he was even more so on Saturday, in my heart all though the walk honors Aiden and all preemies, it helps me do something for Chase who isn't here with us..... Or is he..
I say this cause this year they changed the route we walk and added on another mile. The new route brought us down roads I've never been down before. With Chase on our minds and in my heart, as we walked a sign popped up. It said CHASE Inc.
Now how weird is that?? So me being who I am made everyone who made it, on our team take a pic (one person is missing and we thank you Elisa for taking the pic)
To me this was my sign from Chase saying "don't worry Mommy I am here with you all"
I almost cried but instead smiled. Although I did cry later thinking about it. It just makes me miss him more and more.
So i am posting some pics of the walk, hope all you enjoy..

On another note, all is going great with Aiden. I forgot to mention in my last post that he had his eye appt and in one eye he is a bit near sighted. They are going to watch it and see if it gets better or worse. If it worsens well that just means he'll have to wear glasses when he is a little bigger. Right now it also causes him to have a bit of a cross eye. You don't really notice, or I don't, unless he is super concentrating on something or if he is really really tired. It's actually kinda cute, but I do hope it corrects, cause I don't want to have to beat any kids up later in life for picking on my little man.. ha ha ha (Don't mess with mamma bears cubs!)

He also has OT coming for the first time to evaluate him on Thursday with his PT. She is going to work with him with a sippy cut and possibly a bottle, which at this point I can do with out the bottle, it's less to ween him from later. He now knows what the sippy cup is and what to do with it just from me working with him, but still doesn't get the concept that he has to suck the juice out. He will tip it toward his mouth but gets mad when nothing comes out and if I take the stopper out he pours too much in.. So every day is a new try. But he is learning and that is what counts.

He also stood for me today for about an entire minute, then did it again for about 30 seconds. i was holding him of course, but you have to remember this is the kid who refuses to stand and just wants to bounce and jump every second. So today was a really good day for us, and we got to go to dinner with his Oma and Grampa and family for Oma's birthday..
Happy Birthday Oma, from Aiden and the clan xoxo

Well enjoy the pics and I will post more soon..