Well here is the out come of yesterdays appointment. Sorry for not posting sooner. I seem to be getting another cold and just felt ikky yesterday.
Aiden had his doctor appointment with GI and it was to discuss having his tube out. The doctor told us that they usually make a child wait 6 months of not using the tube before they remove it. UHHHH NO!! Please take it now.. !
So with that said, they agreed that Aiden has to go back April 2nd for another check up and if he is still not using the darn thing then they will schedule to take it out the following week.. YAY..
It would be one thing if it was the button but it's the original tube and it's long and a pain in the butt. I have to pin it to his diaper, he is always pulling on it when I change him, every so often the pin comes loose and falls off. Besides that it always looks nasty around the site no matter how many times you clean it.
Most kids have the button put in after a year but they chose not to since we assumed he would not have it much longer.
The doctor said that the hole will close up with in just a few days and thats it. It will be gone and healed and over with.. I can't wait to be able to take him to the beach this year and in the pool with out having to wear a swimmie, shorts, and a onsie to cover the tub.. What a pain in the G-tube.. haha.. Ok that was a bad joke..
Thursday, February 28, 2008
Tuesday, February 26, 2008
February 26, 2008
Well Aiden has started EI with the new place and so far we have had one session. I like the new person, she works really well with Aiden and is very nice. Too bad once we find a house we will be moving and have to shift to a new company once again since we will be about 40 miles south of here. So for the time being we have EI on Thursdays and Swim on Wednesdays. Then we will be having PT but I'm unsure on what days yet.
A few new things.. We got a new tooth that FINALLY cut through the gums. It's taking it's sweet time showing but it's there, so now we have 3 teeth at almost 21 months old.. (that's just funny to me) We can also stand up from a sitting or crawling position without crawling to something and pulling up on it. My boy is now off and running.. (well he attempts to run... lol)
Not much more new news. We have an appt with GI tomorrow to talk about getting the G-tube removed YAY!!!!!!!!!!!!!!!!! This we are all siked for, I can't wait and neither can daddy, or nonny, or anyone else. Aiden on the other hand may miss playing with it, the kid is insistent on playing with it when I change his diaper and fights with me to let go of it. I told Chuck we're going to have to cut him a piece of tubbing to keep..
So that is about it, I'll post more tomorrow and let you know how the GI appt goes but in the mean time here are a few older pics I just love..
A few new things.. We got a new tooth that FINALLY cut through the gums. It's taking it's sweet time showing but it's there, so now we have 3 teeth at almost 21 months old.. (that's just funny to me) We can also stand up from a sitting or crawling position without crawling to something and pulling up on it. My boy is now off and running.. (well he attempts to run... lol)
Not much more new news. We have an appt with GI tomorrow to talk about getting the G-tube removed YAY!!!!!!!!!!!!!!!!! This we are all siked for, I can't wait and neither can daddy, or nonny, or anyone else. Aiden on the other hand may miss playing with it, the kid is insistent on playing with it when I change his diaper and fights with me to let go of it. I told Chuck we're going to have to cut him a piece of tubbing to keep..
So that is about it, I'll post more tomorrow and let you know how the GI appt goes but in the mean time here are a few older pics I just love..
Thursday, February 14, 2008
Wednesday, February 13, 2008
February 13, 2008
We had our first swim session today. Daddy took Aiden for 9am and when they got home he said "He Loved It!" I knew he would, he loves the water, so now the plan is to go every Wednesday morning for the 30 min session.
We meet tomorrow with the new Early Intervention agency too. So after that we should have a rough idea of who will be working with Aiden and on what days. I am hoping that if he is going to have PT, OT and Speech that two of them can at least come on the same day. If they all com on a different day and we have swim on wednesdays then we are going to have a hectic week every week and feel like we are always stuck in waiting for E.I.
Guess I'll know more tomorrow...
We meet tomorrow with the new Early Intervention agency too. So after that we should have a rough idea of who will be working with Aiden and on what days. I am hoping that if he is going to have PT, OT and Speech that two of them can at least come on the same day. If they all com on a different day and we have swim on wednesdays then we are going to have a hectic week every week and feel like we are always stuck in waiting for E.I.
Guess I'll know more tomorrow...
Monday, February 11, 2008
February 11, 2008
What a busy week it's going to be.. We have either appointments for Aiden, us, or the girls every day this week. Today we saw the eye doctor. I didn't get to go, I stayed home with the girls since they kept me up most of the night. I was just too tired and knew if I went to the appointment with Aiden and Chuck that I'd get no sleep until after Chuck got home from work and the gym tonight which is midnight. So the bad part about not going to an appointment is that I don't get the full mouth full of what she said. I usually get the short version. The VERY short version, lol. Chuck said that the doctor didn't mention that Aiden's eyes got any worse, which is good. However since wearing the eye patch wasn't a big hit with him. (He's just peal it off) we are now going to put eye drops in his right eye once a week, which will dialate the eye and force the other eye to work more to see close us. (So it helps the lazy eye get stronger) The doc said that kids react different to the drops. Some kids the drops last for 24 hours and others it last up to 3 days, so for now we only have to use them once a week and then we go back to see her in 3 months.
As for the rest of the week, well we will be meeting with the new Early Intervention team this week to set up a schedule. We also start swim on Wednesday mornings at 9. It's at the YMCA but the calss is held by his E. I.
I was going to take him but gave Chuck the option to go and he wanted to and i think it will be good Aiden and Daddy time. Besides Aiden loves the water so I think it's going to be fun for both of them. Then to finish the week up, tomorrow we meet with the realtor, wed is swim as I said, Thur I have a eye appt and we meet with the E.I. team, and Friday my little Riley has an appointment with the foot doctor.
Next week however we have nothing scheduled except Mommy gets to go out on the 23rd.. YAY for mommy.. I love my kids but man I need a break and some serious Adult time with no crying, no diapers, no messes, and no stress... and I'd take a few nights of great sleeping in something comfortable since my bed and my futon are no longer cutting it for me since I had the girls.
SO that's about it. We are still house hunting and hope to find something we love and can afford soon. We are still not sleeping, and we are still loving the fact that we have 3 beautiful healthy kids who in the end will make up for all this not sleeping business.. LOL
As for the rest of the week, well we will be meeting with the new Early Intervention team this week to set up a schedule. We also start swim on Wednesday mornings at 9. It's at the YMCA but the calss is held by his E. I.
I was going to take him but gave Chuck the option to go and he wanted to and i think it will be good Aiden and Daddy time. Besides Aiden loves the water so I think it's going to be fun for both of them. Then to finish the week up, tomorrow we meet with the realtor, wed is swim as I said, Thur I have a eye appt and we meet with the E.I. team, and Friday my little Riley has an appointment with the foot doctor.
Next week however we have nothing scheduled except Mommy gets to go out on the 23rd.. YAY for mommy.. I love my kids but man I need a break and some serious Adult time with no crying, no diapers, no messes, and no stress... and I'd take a few nights of great sleeping in something comfortable since my bed and my futon are no longer cutting it for me since I had the girls.
SO that's about it. We are still house hunting and hope to find something we love and can afford soon. We are still not sleeping, and we are still loving the fact that we have 3 beautiful healthy kids who in the end will make up for all this not sleeping business.. LOL
Tuesday, February 05, 2008
February 5, 2008
SO we are under construction too.. As we have updated the looks of the girls blog, Aiden's is getting a face lift too.. I uploaded the header of what it will look like and will be doing the rest soon.. Stay posted to see the new look. It should be done by the end of the week.. And a BIG THANK YOU to Hilary.. Our Blog friend who helped out.. You Rock Hil!!!!!!!!!!!!!
Monday, February 04, 2008
February 4, 2008
We lost weight!!! That is a first, and I will chalk it up to Aiden's cold but we are now 24.2 pounds... I'm also chalking it up to the cold and MAYBE a few new teeth coming that Aiden hasn't been eating oh so well this week. Even the things he LOVES he sometimes won't budge after a few bites. From the look of things, his two front teeth look like they are pushing there way through the gums. They are not yet at the bottom to push through or feel ridges, but you can see the "bumps" there. If they're anything like the two bottom teeth, they will take forever for the final cut through.
Other then that, I think his cold might be on it's way out (knock on wood), he seems to not cough so much which is good, and the fact that I have had two humidifiers running in my small little apartment 24 hrs a day on and off with vicks in them seems to have helped us all.
Mr Man also got his RSV shots today. I know its for his own good but I'll be happy next year when he doesn't have to get jabbed with two needles every month, not to mention if he has to get any other vaccines.
We have a few more appointments this month too. We see the eye doctor on Monday the 11th and then I made an appointment with GI to talk about and schedule Aiden to FINALLY have his G-tube out!! YES OUT!!!! The doctors told me before once he was drinking a normal amount on his own and staying hydrated then we can have it out. They don't usuallu like to take them out during winter in case a kid gets a cold, it's the easiest way to get them liquids with out forcing them to drink when they are sick. BUT since Aiden just had his first cold ever in 19 months and did fine drinking and I haven't used his G-tube since November I think it's time.
On a good day he'll drink 24 ounces on a bad 12 ounces, and some days more then 24. Either way he's done fine keeping hydrated and healthy so we will see what GI says.. This I am so excited for this. I can't wait for him to have this thing removed for good.
He's also walking so much more and so much better. He's so cute when he does it that i can't help but smil ear to ear and he is so proud of himself. He's such a happy kid and loves to laugh. I look forward to him talking more and more in the future too.
We are currently on the waiting list for the new EI place. I'm hoping it happens soon and doesn't take forever. I have a feeling it's going to take a while and by the time they get things going and we get a routine running we will have found a house and be moving, then we'll have to do this all over again and it's going to Aiden who suffers. That just sucks!! I want him to get the services he needs and should get and not have to wait weeks on end for the "system" to kick into action and get there crap together.
Other then that, I think his cold might be on it's way out (knock on wood), he seems to not cough so much which is good, and the fact that I have had two humidifiers running in my small little apartment 24 hrs a day on and off with vicks in them seems to have helped us all.
Mr Man also got his RSV shots today. I know its for his own good but I'll be happy next year when he doesn't have to get jabbed with two needles every month, not to mention if he has to get any other vaccines.
We have a few more appointments this month too. We see the eye doctor on Monday the 11th and then I made an appointment with GI to talk about and schedule Aiden to FINALLY have his G-tube out!! YES OUT!!!! The doctors told me before once he was drinking a normal amount on his own and staying hydrated then we can have it out. They don't usuallu like to take them out during winter in case a kid gets a cold, it's the easiest way to get them liquids with out forcing them to drink when they are sick. BUT since Aiden just had his first cold ever in 19 months and did fine drinking and I haven't used his G-tube since November I think it's time.
On a good day he'll drink 24 ounces on a bad 12 ounces, and some days more then 24. Either way he's done fine keeping hydrated and healthy so we will see what GI says.. This I am so excited for this. I can't wait for him to have this thing removed for good.
He's also walking so much more and so much better. He's so cute when he does it that i can't help but smil ear to ear and he is so proud of himself. He's such a happy kid and loves to laugh. I look forward to him talking more and more in the future too.
We are currently on the waiting list for the new EI place. I'm hoping it happens soon and doesn't take forever. I have a feeling it's going to take a while and by the time they get things going and we get a routine running we will have found a house and be moving, then we'll have to do this all over again and it's going to Aiden who suffers. That just sucks!! I want him to get the services he needs and should get and not have to wait weeks on end for the "system" to kick into action and get there crap together.
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