I talked to the doctor today about taking Aiden off Reglan. I looked up some info on it, as I do most things he is taking and I don't like the side effects it can cause. I also wonder if that is what is causeing him to be so cranky. He was a bit better today but not at all like he was a week ago.
I talked to the audioligist today too and she told me once we get closer to being discharged from the NICU that she will help us set up his appointment at children's for the other hearing test. I asked her if I am now to assume that he can't hear me and she said it is still too soon to tell. That the test they do is a plain and simple pass or fail and the sound they send to them is very low like a wisper. That is not to say he can't hear a normal voice tone. For now I am keeping my fingers crossed and hoping for the best. I know it's out of my hands and the only thing I can do it wait.
Aiden is also set up to see the pulminary specialist tomorrow and he will see the "feeding team" from children's tomorrow too. They will evaluate him and his suck and swallow issues. He may also have the swallow study tomorrow but if not then he will be having it on Thursday. It's going to be a busy few days and hopefully a lot of answers will come from it. I'm keeping my head up and hoping for the best possible out come. One more day down... ?? how many to go..
The pictures I posted are from the other day. There Aiden and Nonny (my mom)
1 comment:
Oo yuck... Reglan! Theo was on that one a few months ago... it made him even MORE hyper than usual (if you can believe it!) and also very emotional. He was bursting into tears at the drop of a hat, and also getting very angry over things that normally would be not a big deal. Once we got him off of the Reglan, his personality returned to normal.
Hang in there, Jess! It sounds like things are moving along over there! Every day is a day closer to Aiden coming home! We will continue to keep you all in our thoughts and prayers.
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