October 22, 2006

Happy 19 Weeks Aiden!!!
It's been a pretty calm week end for Mr. Man, right now it's just a waiting game to see how things pan out this week. The coud down has begun.
He did have his eye exam today and they look so much better. No more stages of ROP for what the report shows, and I was told the doctor was very pleased at what she saw. He also has a VCUG tomorrow. This is a test where they take him to Children's and fill his bladder to see if the fluid refluxes back to his kidneys at all. There doing this test because of the UTI Aiden previously had. Since it's unusal for a baby to get one "just because" they are looking for a reason it may have happened. So once they fill him up, if it shows reflux then they will know, if it doesn't then we just move on. I'm just happy it's a simple test and not anything that requires the OR to do. Once they see what they need to, he pees out the fluid and it's all done. YAY..

We also have a few rules for Aiden's home coming (per the NICU)
No KIDS over the house, No kids in Aiden's face, and No crowded places like malls or parties. Also no smoking (whichi s not an issue because we don't smoke and I wouldn't allow it around Aiden anyways. Added to that, if anyone has been smoking, they can't hold him, touch him, non of that with out washing and using purell. They also need to change there clothes. SO plain and simple No Smoke, and if you smoke stay away from my kid..
As for the No kids rule, well that is due to RSV season. Aiden comes home, smack dab in the middle of it and RSV is very bad for a preemie. It could cause a lot of problems or even death for a preemie and more so for one who has CLD like Aiden does.
Most of us get RSV, it shows up in us or kids like a runny nose or a sneeze and goes away cause our body is strong enough to fight it so we just think it's the "common cold" however it's a really bad bug that Aiden must avoid at all cost. He will get the shot for it before he leaves the NICU to come home and then will have to go to the pedi for the shot once a month until RSV season is over which is the end of March. I am sure there will be a few hearts that are broken for the little ones waiting patiently to see Aiden, but unfortunetly it's not a risk I am willing to take to have a visit that he won't really remember anyways.
As for the holidays, well we will see how that goes. We might have to stay home. So far word is that it is possible depending on how he is doing and if no one has a cold. But he is not to be passed around to be held by a million people. He again is not to have kids hovering over him or in his face and every one must wash there hands and use purell.

Funny I always said I didn't want to be one of them crazy moms who are nuts about washing hands and who holds there baby. Things work out in a funny way cause now I have to be a "crazy mom" but it's to protect him from the things that he isn't strong enough to fight off right now. So although it may take a bit of adjusting for some people, and lots of waiting for others, I am sure people will try and understand we are doing what we need to do for our peanut.