September 7, 2006

Aiden is still on his feeds and off nasal canula. YAY
As for his feeds well, sometimes they get some back, sometimes they don't get any back, and sometimes they get all of it back. But as I said, we (Me and Chuck) did expect this. It seems to be going just how it did when he started his feeds last time. Also they checked his crit and it's low, they also checked his retick level and it was low. This is the amount of red blood cells your bone marrow is making. It's low for many reasons. One being that Aiden is a preemie still, two he's not eating like a normal baby, and three he's not getting iron the way he should and since iron is given by mouth he can't have suppliments until he can feed on full feeds. These are some of the building blocks he needs and once things fall into place this "retick" level should go up. Right now he just needs a little boost so he is getting a blood transfusion today too. This will bring his crit level up to where it belongs and then who knows he might even start digesting his feeds better. That is what happened last time. He got blood and off he went running so it seemed. I have hopes all will fall into place this time too.
We had the family meeting today with the new attending. He is really nice, so we have lucked out so far that all the doctors Aiden has had, have been really good and easy to talk too.
Here is what we have for today...
Respitory... Aiden remains off the nasal canula and the doctore is extreamly pleased with this. He said some babies go back and forthe for a bit, so don't be surprised if he bumps back on again for alittle while, but so far he is remarkable and his lungs look good.
Nero.. He will have another ultra sound of his head to see if every thing has resolved, but the plan is for him to have an MRI in the future. This will be before he comes home, so one I start talking about his MRI appointment you know it's only a matter of days.. YAY, as for right now, his last ultra sound of the head (last month) looked really good as far as any effects on him for the future. We won't know until that time comes. But so far so good.
Kidney.. The ultra sound the other day shows no fluid and all looks like a perfect kidney
Eyes.. The eye doc said he will be checked again on Monday but right now they have not gotten any worse and the vessels are a little (very tiny amount) less dialated. But to remember it has only been a few days. She was very pleased that they are not any worse.
Heart.. his heart looks fine and doesn't show signs of any problems they can see.
Stomach/Intestines.. Well we know this has been an on going battle, but no new updates since the other day.. We are all set to keep going forward with feeds..

SO, You go Aiden!! You show them, and in the end we will be here with open arms to take you home.. I can't wait for this day.. daddy thinks it will be sooner then later, and deep down inside I sure hope he is right.. Stay strong little boy.. We love you!!!