September 27, 2006

Aiden had an LP done today (lumbar puncture) so they can test the spinal fluid and make sure the staph is gone. He did it like a champ they said, which is no surprise to me, cause he seems to go through some things like it's nothing. He has one day left of the antibiotice unless the LP shows something and then he can have his IV out. They also chose to up his diaral to help respitory wise and maybe this will help him not d'sat during bottling. That is another thing he did good at. He got two bottles. One at 4am and another at 4pm and he took over half his feed. His magic mumber is now 30 cc's and he does it well. He did d'sat and had a small spell at the 4am feed, but I also contribute that to having a new nurse who has never had him before and never bottled with him. This is going to be the hard part for me. It's very nerve racking not having my primaries on when he is going through something so important. Don't get me wrong, the other nurses are great, but they don't know Aiden like most of his primary team does.
SO they have decided that he will bottle only twice a day until he gets better at it and the feeds between bottling he will just get through the tube in his nose. It's so close (home) yet still so far away. I can see the light but it's still a long way off. It's going to be an amazing, nerve racking, crazy day when he comes home. I can't wait...
I am still waiting to hear if he is going to have his hearing screening tomorrow too. They told me a 40 weeks, and can you believe it, his due date is tomorrow.. He is now not negitive days old, ha ha, as of tomorrow his corrected age is 1 day old. Funny how that works isn't it. One day old and he is really 111 days old.