January 5, 2007

It's a new year and so far it's started of great.
Aiden is off his oxygen 24 hrs a day now, (he has been since Christmas) and we called the pulmonary doc to let him know. He was pleased Aiden is doing so well. WIth that said, his visiting nurse called the pedi also to update him and to get the ok to discharge us. No more visits from English Joan. We will miss her, but promise to keep in touch and send pics.
It is amazing all the friends we have made along the way. All ove the US and even our great friends Jen and Ronin in Canada (who we promise to visit some day after the new baby) her new baby not mine lol.
We have also cut Aiden's calories down. We were playing with his feedign schedule too and pushing it to every 5 hrs rather then every 4, but to be honest, every 5 is just a pain in the butt. It's not consistant like 8, 12, and 4 is, so I went back to every 4 hours. The calories are still cut from 660 (formula calories) per day to 500. This whould help in the rapid weight gain he was having. It was my only concern when we talked to the pulmonary doctor. He said to try and keep it every 5 hrs, cut that amount he was getting and lower the calories. Some of which I already did on my own.
We are now adjusting and re-adjusting, but currently at 1oo ml's of formula per feed every 4 hrs at 25 calories and ounce. He was gettin 110 ml's every 4 hrs at 30 cal an oz. So this should help.
This doesn't count the cereal and fruits and veggies he was getting and still is.
The nurse did say what ever I was doing on my own for the last week and a half was working. Aiden was gaining almost a pound a week (and tha tis way too much) and once I changed things up on my own, he only gained 1.5 ounces in 5 days.. That is exceptable and not going to put him in shock of gaining too fast or having a weight loss. He is still gaining weight, and it being good weight, not fluid, but at a normal rate.
Speaking of fluid, he has also only had lasix once in about 2 weeks. How amazing is that.. YAY
His actigal he should be off completely at the next GI appt on the 17th too.. Then the only thing he takes is prilosec for the reflux and iron.

Early Intervention came and worked with him and there evaluation was that on some things he is at a 5 month old level and other things a 1 month old. That he should catch up just like most preemies do, but it will be on his schedule. They also said that since they worked with him after waking him up and while he was a bit fussy, it's hard to evaluate him on what he does for us and wouldn't do for them at the moment. Which I knew and that is fine. I knew he was behind on some things and ok with others, but I also know he'll learn and grow and be just fine in the end.

All in all, it's been pretty good. He is now almost 14 pounds. His last actual weight was 13 lbs 14 oz. He is a chunky monkey, but MY chunky monkey.