January 11, 2008

Aiden is 19 months old today, can you believe it!
It's been a crazy 10 days or so. Last week we had our appt with the pedi and he got his boosters and RSV shots which meant he got poked with 5 needles that day. :(
Then Wed of this week we had his scheduled MRI. He wasn't allowed to eat 5 hrs prior or drink anything 3 hours prior so I tried to set a schedule to get him fed and full at the very last minute I could fit in. Well we all know my schedules never seem to stay on track. He woke up early on his own (too early) 4am, and finally after 2 hrs of being awake and not getting him to go back to sleep I fed him at 6 (I was planning 7:30-8:00 since his MRI was scheduled at 1:15).
He didn't eat much, had some juice and finally fell back to sleep at 6:30 so i wan't going to wake the poor kid up at 7:30 to try and feed him again. He got up at 8:30 and I squeezed in an apple sauce (what a few minutes and i didn't want him to starve) He ate it right up and had some more juice. We got ready and Nonny (my mom was here to watch the girls) and we planned to leave about 10:30 since he had an appointment with the child shrink at 11:45 first (part of the MRI study they are doing along with his regular MRI)
Well Daddy was wiped out and exhausted cause the girls were up all night and as much as he wanted to be there he ended up staying home with the girls (assuming they would sleep since they were up all night) and he could get some rest too, so Nonny went with us.
We left the house at 10:15, got to Children's Hospital at 11:20 and checked in. We had our appointment with the "shrink" and that took about an hour and then we walked over to MRI to check in. We waited a little bit and then they came to tell us they are an hour behind cause one of the scans are broken so we could go get something to eat. (Not Aiden though, the poor kid)
Me and my mom went to the cafe with Aiden and grabbed a bit and I was so happy that he didn't fuss for food, he didn't really care which was good cause it would of broken my heart even more to not be able to feed him if he was really hungry. We went back to MRI and waited about 45 more minutes and they called us in. We weighed him, talked about this and that and prepped for the IV. (I was not looking forward to this since it's been a wile since he has had one and he use to be such a hard stick. i have a 2 stick minimum before I refuse to let them poke him.
They got it in on the 2nd stick which almost got pulled out cause he was fighting and the nurse holding him who I guess is really good at it, didn't anticipate him being so strong for such a little kid.
SO the IV is in, Aiden now thinks they are all evil I am sure and he is getting some love from Mommy and Nonny. Then about 15more mins and they come to put the meds in. Those took about 4 to 6 mins and he was out like a light.
Off he went to sleepy land and into the MRI for 2 hours. All went well til the end and the last set of films (a 7 min series) he woke up for so they had to redo them which meant they had to give him a little more sleep stuff. The got the films all done and we waited in recovery. he had to wake up, drink some juice and be awake for about 15 mins before going home. Well he didn't want to wake up and it took a while
Well after all that we finally got to leave the hospital at 7:15pm.. 9 hours people... Oh what a day, I am glad Chuck didn't go cause even if he wasn't tired he would of never lasted 9 hours there.

We should have the results in a week or so and I assume all is fine. They did it as a follow up because of the bleeds he had in his brain when he was born as 98% of preemies born that young do, and they did extra films for the study they are doing about kids who have the bleeds and how they progress through the years. We figured he had to haev the MRI anyways so why not let them take a few extra pictures if some place down the line it could help out another little kid.

On the EI side of things, Aiden was suppose to have his 1 year eval on Thursday at 8:15 in the morning. Well since we didn't know the MRI was going to mess up the entire day and his entire sleep schedule. (She was in and out of it all night til about 10:30pm and then awake til 4am) So EI showed up and we all talked but let AIden sleep and rescheduled to do it next week. In our talkes we talked about getting him a PT and speech. PT to help build mor trunk muscles which are tied into speech believe it or not and speech because, well he's delayed.
The problem with this is that Tri-City the company we go through doesn't service our town since we moved, and the only reason we still have them is because his 2 awesome EI workers that come every week live one town away and have no problem keeping us. However now that we need and want speech we can't get a speech person willing to travel to wakefield. It's not far from the service area but what can ya do. This means we have to switch to Criterion and get all new people and lose the people we have which kills me but I know we have to do it cause it's the best for Aiden to get him the services he needs.
Other then that he is doing fab with EI and learning new things all the time. He is now walking better then last week and I am sure in the next few weeks he'll be walking all on his own.

We've come so far, it's hard to believe he was my less then two pound baby that almost didn't make it and spent 5 months in the NICU before coming home. He's an amazing child, and wonderful son, and i love him more then life. (even when he is tearnign apart the living room and the computer desk as I try to type)

I will have more pics soon, I've taken tons just haven't put them on the computer yet.